One thing that the Boston doctor found with those 13 vials of blood is that my immunoglobulins are low. So she suggested IVIG which is basically an infusion of antibodies which will help me avoid getting sick or make any sickness less severe. Unfortunately I can’t get the infusion at the same time as chemo which meant I was there last Tuesday during my off week. Bummer. And they always drip the first infusion of anything new really slow so I was there for 6 hours. I got a lot of work done, but it isn’t fun sitting in that chair that long. The next one should be a lot shorter.
I increased the dosage of the cellcept intended to replace the steroid a couple of weeks ago and so far that is going fine. I haven’t started to step down the steroid yet. Hopefully that will start soon so I can start the process of returning to myself in the mirror.
There isn’t much else to share right now. I have a virtual appointment with the Boston steam on the 12th so I’m hoping they might have another suggestion for me.
Other than that. Things are boring. And that’s a good thing.
No comments:
Post a Comment