My 2 Favorite Words

I had scans on 11/17/25 and the results posted the next day. My own interpretation of what I read is that nothing had changed since the last scans, but I decided to be patient and wait on the opinion of someone with a medical degree. That happened yesterday and I’m excited to still be stable as well as unremarkable!!

I’ve now been on Trodelvy for 2 full years which is excellent to be on the same line of treatment that long. It knocks me down and the stomach issues continue, but nothing I can’t handle to keep enjoying all of my minutes.

I talked to the Boston team and am increasing cellcept again tomorrow which is the drug intended to replace the steroid. If my labs are good Monday, I’ll start stepping the steroid down. So I’m going to be good…sleep well, eat well and wear my mask. Stack the deck towards healthy.

And now, to focus on a fantastic meal with family on Thursday and an even better dessert! I might need to break into the pie a day early.

IVIG

One thing that the Boston doctor found with those 13 vials of blood is that my immunoglobulins are low. So she suggested IVIG which is basically an infusion of antibodies which will help me avoid getting sick or make any sickness less severe. Unfortunately I can’t get the infusion at the same time as chemo which meant I was there last Tuesday during my off week. Bummer. And they always drip the first infusion of anything new really slow so I was there for 6 hours. I got a lot of work done, but it isn’t fun sitting in that chair that long. The next one should be a lot shorter.

I increased the dosage of the cellcept intended to replace the steroid a couple of weeks ago and so far that is going fine. I haven’t started to step down the steroid yet. Hopefully that will start soon so I can start the process of returning to myself in the mirror.

There isn’t much else to share right now. I have a virtual appointment with the Boston steam on the 12th so I’m hoping they might have another suggestion for me. 

Other than that. Things are boring. And that’s a good thing.