I had requested to meet with my oncologist to discuss the pros and cons of a treatment change to positively impact my lungs as I’m sick of being sick or fearing getting sick so I’m missing out on the things I’m fighting to live for. We had that appointment today.
He reiterated that my pneumonitis is treatment related and not disease related plus confirmed that they did not find cancer cells in my bronchoscopy. However, he also stated that it was previous treatment that put me where I’m at. My current treatment isn’t helping or hurting my lungs. And it is effective on the disease so he is not supportive of a change while it it working. Ugh. But, I get it.
So then we talked about ILD and looking at it as a separate condition with potential treatment dedicated to it. That sounds interesting!! Unfortunately this is not an area of expertise for my oncologist so he is going to consult with my pulmonologist and his colleagues in Boston.
The good news is he understands my position and wants to help me find a way to not be so fragile. I’d like to be reliable and be able to make plans that I can count on plus be able to attend the important events without the likelihood that I’ll end up sick for months.
I’m hoping there is a reason for a trip to Boston soon!
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