Boston

It has been a really long day. I was on the road from mom & dad’s at 4:35am this morning to drive to Boston to pick Dan up from the airport. He was up at the same time as me for his flight. We then proceeded to the hospital to meet with the lung specialist. All I can say is I don’t understand why someone would choose to live in a place with all that traffic.

I was so afraid we were doing this for nothing, but the doctor was really thorough and I have hope even though today was mostly history/fact gathering. Minimally, she’s got a plan for another medication that will have the same effect on my lungs as prednisone without the side effects. That would be awesome. I can’t stand how the steroids make me feel and the weight gain is awful. I don’t feel like myself. So I’m really hoping this works.

She sent me for bloodwork and they took 13 vials!! Unfortunately some of the tests she ran won’t come back for a couple weeks and during that time she’s planning on presenting my case to the team of doctors focused on ILD. Then we’ll have a virtual appointment where I hope she’ll have some new ideas. 

We then headed back home. 14 hours of travel for both of us!! Long day, but maybe the start of a new plan?