Monday, June 16, 2025

Catching Up

Life has been crazy lately. Normal, non-cancer,

life. I consider that good!  Work is nutty, baseball is in full swing and Ryan is still in school. Run, run, run. Normal.

On the disease front, I’ve continued my recovery from the April hospitalization. Still weaning off steroids. I’m going down to 20mg tomorrow and then I’ll be back at my 10mg baseline in two weeks. I certainly hope to find my face again under all this puff. And maybe stop needing to eat all the time. I really enjoy food!

I had scans a few weeks ago and the good news is that there is only 1 active tumor in my liver that they are watching. Woot woot!! I’m considered stable and unremarkable. But fragile. Now there’s a word rarely used to describe me!

My lungs are what really impacts my quality of life so I’ve been pushing my team on that. The next step is a second opinion in Cleveland or Boston. I intend to pursue that. Soon. When normal life subsides just a little.

How wonderful it is to be engrossed in normal.



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