Thursday, January 30, 2025

Scan Day

Things have been rough for a while. I get one little cold and it knocks me down for weeks. I was back on oxygen, delayed treatment, increased steroids… and still didn’t feel good. Just within the last couple of days, I feel like I’m improving from a sick perspective. Unfortunately that lined up with my side effect week which is truly horrendous. At least it only lasted a couple days this round. But during those days, I lose everything I eat and drink leaving me quite weak. My doctor wants to reduce my chemo to 75%, but I’m not going there. How can less medicine be as effective? And treatment is ‘just’ keeping me stable. I can handle 2 days of hell.

My hope is that next round will be better if I can keep myself healthy which means hibernating and wearing a mask when I do go out. It is not fun, but better than weeks of not being able to breathe. See you all in May!!

Today was my quarterly scan day. I won’t get the CT results until next week, but the bone scan came back stable so I have no reason to think the CT scan won’t be similar. What I hate is the 3 hours between the injection and the bone scan, but I was able to attend 2 conference calls for work and treated myself to the best omelette. I could taste it and ate it all which is the most I’ve eaten at once in a while. I truly enjoyed that omelette. That might need to become part of my regular routine.

In other good news, we were selected for a retreat through Little Pink Houses of Hope with other families going through this nonsense. We’ll be spending a week on Carolina Beach and I’m so excited. Maybe I am back to a place where I can walk the beach for a bit? Tyler just started a new job so he probably won’t be able to go, but there should be other teen boys that Ryan may be able to connect with. And I really hope there are other husbands for Dan to commiserate with.

All in all, I can’t complain. I’m still working, cooking and watching lots of bad TV. 

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