I am so excited…I had a bone scan and a CT scan yesterday with an appointment with the pulmonologist this morning. The bone scan reads stable and the CT scan results aren’t published yet, but the pulmonologist said my lungs are significantly improved. There is now only inflammation in the bottom. Yay!
He tested my oxygen levels walking around while not on oxygen and I did well so he took me off oxygen during the day while I’m doing regular activities. I’ve been home for hours now and it is so weird. I keep trying to grab my lines and step over them, but they aren’t there! My ears are so happy.
Unfortunately supplemental oxygen is like a drug and I’m feeling a little wonky. I may allow myself to wear it for an hour to help my body get used to this, but overall, this is fantastic.
He also reduced my steroids to 10mg which means I don’t have to take the antibiotic with it. And, he’s setting me up for a sleep test to see if I can ditch the oxygen overnight as well.
Now I need to make sure I don’t get sick which probably means I need to wear a mask since I won’t have my own air supply. A cold could really set me back.
I go see my oncologist Tuesday morning and I’m hoping for more good news coming from that CT scan.
Oh, and the best news…I’m under doctors orders to get out there hiking again.
Check this out… I went bald in public!!
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