Long day

I left the house before 8am today and didn’t get home until after 5:30pm. Long day!! But, a good day.

This line of treatment is 2 weeks on with 1 week off. Today was my 2nd round of chemo for this cycle and it went smoothly this morning. I’ll have my off week next week which I’m not looking forward to as that seems to be when the GI issues really hit me. That is no fun. I’m going to try a different medicine combination as I’m still looking for the magic solution.

After chemo, I had a few hours before I needed to leave for my pulmonology appointment so I decided to go to the office. It was nice to see people in person. I need to find a way to do that without getting stuck there all day as the portable oxygen concentrator isn’t the best. I start to feel light headed after a while, but I was on real oxygen at chemo and again with the pulmonologist so I knew I’d be ok for a few hours in between.

My appointment with the pulmonologist was also uneventful. He is pleased with the improvement he’s seeing on my scan, happy I’m down to 2 liters of oxygen and that I didn’t have a decline when I stepped the steroids down from 40mg to 20mg a couple weeks ago. He wants me to step down to 10mg in 2 weeks and then 5mg for four weeks to keep this wean really slow. Ugh. 5mg wasn’t part of the original plan. I guess that means I’ll keep eating, gaining weight and puffing my cheeks out.

I wanted more from that appointment, but he told me that I need to be patient. I’m still really struggling with inclines and stairs. He says the improvement I’m looking for will come. So, I decided to give him a bit of a hard time. I was nice about, but I asked if he thought I was fooling myself into thinking I can stick around for a long time after seeing my scan. He said it is realistic as I am stable. I then asked if it was realistic to climb bald mountain on Labor Day weekend which is 1 mile up. He said we’d make that the goal. 

He agreed I need to keep moving. I can’t risk a fall so that probably means malls for now. Let me know if anyone wants to shop!! It is a medical need :)