It Doesn’t Count

I’ve really been looking forward to saying I haven’t been hospitalized in over a year. The last time was April 2024 so I’m getting close… except that I spent a few hours there today getting fluids, but I wasn’t admitted so it doesn’t count, right?

Unfortunately my side effects are getting worse. I essentially lost all of last weekend and wasn’t recovering like I usually do so off to Roswell we went. I am feeling significantly better now and hope that continues through the night.

Now I’m worried about what my team is going to say. I really don’t want a dose reduction, but I can’t keep having those really rough days. There is one more medicine they mentioned to counteract the stomach issues so I’m holding out hope. The last one we tried with the injections didn’t touch the issue. But, I’m not waving the white flag just yet.

TMI

So the GI issues are getting worse and are now consistent. I’m down for 2 days, hardly able to get off the couch and then some recovery time as I build my energy back up. 

Everything that goes in goes out in a really bad way!! But I keep putting stuff in trying to stay hydrated with some sort of nutrients in my body. I’ve experimented in many ways and it doesn’t seem to matter even if all I have is water and a very bland diet, it will exit badly.

My 2 current prescriptions are not making a dent and I am still against a reduction in my chemo. Luckily it is only 2 really bad days every 3 weeks. But those 2 days are so bad! I’ve started to understand some refuse treatment. Don’t ask me what I want to do on those days.

I spoke to my doctor who gave me a choice of a new med that I would have to inject 3 times each of those 2 days or an opioid which I rejected as I’m working. Wish me luck. My 2 bad days should start Friday which is when the new med arrives. 

I’ve also discovered that it doesn’t matter when I eat ice cream or cheesecake during my cycle…it will always end badly so this week I’ll be trying lactaid as life without ice cream is very sad.

I am not giving up on this line of treatment!! But I am determined to find a way to manage it better.